We were engaged on New years Eve 2008, at home in my jammies , looking at a magazine, he couldn't resist me. We planned our wedding in nine months for the 6th of September 2008, it was a gorgeous fantastic day, I couldn't have asked for more, except for it to last even longer. We had been together since December of 2003, so we were ready to start a family, right to the point! In February we learned that we were pregnant, no problems. We found out we were having a girl, so of course her name would be Campbell, a name I had claimed as a teen. It was my great grandparents last name, and the perfect name for our daughter. We went happily through the spring and start of the summer. I was busy with my 4-H club and also subbing and TSSing. I had been bugging Joe to get this mole on his shoulder looked at and removed. I urged him to get it removed, just cause it was yucky. It was removed and we went on with the summer. Not unlike years past I was at the fair doing what I do, running like a chicken with no head, now 7 months pregnant. It was Tuesday of the fair, a busy show day was coming up. And then I saw Joe walking through the barn towards me. I asked him what he was doing there, he rarely gets to enjoy the fair during the days since he was working. He didn't say a thing, He just looked horrified. I was scared now so we went to the camper where we could talk, then he told me the doctor had just called him and told him he had melanoma. My words were "this is the worst thing that could ever happen" we dropped everything, his Doctor had told him he got him an appointment that day in Pittsburgh at Hillman, we had to leave right then to get there. We told my parents and Joe's parents and we were headed south to Pittsburgh, both clueless and scared out of our minds.
When we arrived the receptionist asked us if we filled out of paperwork and brought it with us, we told her we found out exactly 1.5 hours ago, no we didn't have paperwork filled out. We met with Joe's new doctor, met the PA (who was one of the best assets we could have had, we owe so much to this staff of professionals). It was decided that they would take a bigger excision site that month August, this unfortunately came back not clear. In September they did a dye test to see if it was going to any lymph nods, yes again not good news. The dye traveled to two lymph nods , which came back with cancer cells. Every time it was bad news, worse news, our due date getting closer the future looked grim. On October 25th, our due date Joe was scheduled for surgery at Magees Women's hospital to remove all the lymphs under his arm, to get them out in case anymore had been affected by the now traveling cancer. A total of about 32 were taken out after hours in surgery. I was praying the whole time "please Campbell don't choose today as your birthday". We drove home that night, my mom, Joe's parents, Joe and I in the early morning hours. Baby Campbell was a really good listener, she had to be evicted one week later on November 2nd. We were so happy, ecstatic, ready to go on and enjoy our baby. I still remember Joe having his drain tube still in his back while at the hospital. A reminder of all that was going on with him. The results of this surgery were good, no cancer had spread to any of the other lymphnodes. We were about ready to pack up and head home and enjoy our new baby. That is when the Dr. said "where do you want us to send you for treatment?" What? No one had said anything about treatments. Still not out of the woods. After much discussion, we decided that treatments were the next step.
The Doctor decided interferon treatments would be a beneficial step to boost Joe's ability to fight any other cancer that might try to come back. He would go to Erie everyday, which is a good 40 minute trip in December from our house to get treatment. Joe started at the end of November and his last treatment would be Christmas eve day. So now Joe, Campbell and I would pack up in the jeep (which had a malfunctioning heater at the time) to head to Erie. Everyday I could see him decline, the Dr. said he would feel like he had the flu. Joe reacted negatively from the beginning , everyday we would go he felt worse, looked worse. In my mind I will always have a vision of having to push him in a wheelchair, he was unable to walk into the building. He had lost so much weight. It was like watching him die a little everyday. We thought that this was supposed to be building him up. We of course had Campbell with us everyday and she was not aloud back in the treatment room, so she and I would sit and rock in the glider rocker in the waiting room. I was nursing her exclusively, and like any first time mom I was a little nervous about nursing her in public. The first time I had to feed her I took her to the bathroom and sat in the stall and as I sat there I got mad at myself for making her eat in the bathroom. I decided that day, I wouldn't be ashamed for doing what was best for her in my mind, I sat in the waiting room from then on and I would feed her in the open, well with my cover on. But I figured I had enough to deal with, I didn't have the energy to go feed my baby in hiding. Some days I would visit with some other people waiting for their loved ones. A few days Joe's aunt or Mom would be able to go with us so I could go sit with Joe and they would wait with Campbell. One day a man came to me, he had lost his wife to cancer and he handed me a gift card to Panera Bread and told me to enjoy with with my husband. As Christmas approached a social worker came to talk to me in the waiting room. She told me that the staff adopted a family every Christmas, and they had chosen us. Before we left after Joe's last treatment, they gave us a stack of gifts to open and also gift cards to all of favorite stores. It was one of the worst months of our lives, one ray of hope were people that supported us and helped us get by. We were done traveling but treatment was not over yet. Starting in the new year Joe had to give himself shots of interferon three times a week, still it made him feel terrible and he was unable to go back to work. In late winter our families and my 4-H families had planned a pizza hut benefit, I have never seen so many people reaching out to us. Also our local American Legion and our friends there had planned a benefit spaghetti dinner for our family. We live in a fixer upper and it had been a work in progress, one day in the new year one of Joe's good friends brought a whole crew of men over and finished putting our insulation on the outside of the house. It was overwhelming the love and support that our whole community gave us.
Headed into summer that year Joe said he was done with treatments, he couldn't do it anymore. He regained strength and was able to go back to work. He was able to return to the job he left temporarily. Joe had follow ups every month for awhile, then it was every three months, then every six months. This summer was his 5th year out from his diagnosis. He has had a few scares in that time and lots of moles removed, but he has a clean bill of health right now.
When I think back on this time it seems so long ago but writing about it now has brought up emotions that are raw still, and might always be. One thing Joe always did was sing this silly song to me, he would sing one to me before we had the girls, and then when we had them he changed it to include them. I knew it was bad when I didn't hear him singing this silly song to me anymore. Every other day I didn't pay much attention to it till it was no longer there. Just like the song says you never really know what you got till it's gone. Thankfully we were able to have another healthy baby, and Joe's silly song has returned. My girls won't remember when that song wasn't being sung, maybe it's better that way. I am thankful for that first year of our marriage, what we learned about each other and what we were made of, how we truly did make it through sickness, how we came out the other side with two beautiful girls.
I heard someone say once in regards to my husband "it's only skin cancer" No kind of cancer, is "just" cancer. Melanoma left untreated can certainly be fatal. Be kind your birthday suit! So there will be many more birthdays to wear it to. I am always up on my soap box about wearing sunscreen. Some knew the reason why, some didn't, but now you do. Your chance of melanoma can greatly be reduced by using sunscreen, preferably with zinc oxide. For more information follow the link below.
http://www.skincancer.org/skin-cancer-information/melanoma